0 name There were no missing data as most items were compulsory in the online EIQ, but even those who answered the paper version for the test-retest did not miss any questions. SourceModified If responders skipped a dimension or recall period, because they were not applicable to them, a score for that dimension or recall period could not be calculated. Text Approvals were obtained from the ACT Health Human Research Ethics Committee (ETH.6.13.155), and from the ANU Human Research Ethics Committee. Psychometric properties of the French version of the Endometriosis Health Profile-30, a health-related quality of life instrument. DeVon HA, Block ME, Moyle-Wright P, Ernst DM, Hayden SJ, Lazzara DJ, Savoy SM, Kostas-Polston E. A Psychometric Toolbox for Testing Validity and Reliability. external Eleven percent had a hysterectomy because of endometriosis, which is within the range of 8-29% reported by others [36]. impact of endometriosis at both a personal and societal level (4). H4 0[V`9&q !YfVsu\TDgUfHLO{#vXMw\ja+-  0.749023 g author The common identifier for all versions and renditions of a document. f Res Nurs Health. Items of the EHP-30 were generated based on open-ended exploratory interviews with 25 women with endometriosis [10]. Ricci G, Castelpietra E, Romano F, Di Lorenzo G, Zito G, Ronfani L, Biffi S, Monasta L. PLoS One. 2. endstream endobj 173 0 obj <>/Subtype/Form/Type/XObject>>stream Applied Nursing Research. 2013;19(6):62539. endstream endobj 220 0 obj <>/Subtype/Form/Type/XObject>>stream Additional file 1: of The Endometriosis Impact Questionnaire (EIQ): a tool to measure the long-term impact of endometriosis on different aspects of women s lives. E\\y\FzFfFP\.s=3s#(&Q/ endstream endobj 136 0 obj <>/Subtype/Form/Type/XObject>>stream H4 0'd*&. 0 ? Google Scholar. 0 0 9.949 9.426 re Melissa Parker H*2T0T04&F The readability of the EIQ based on the Fog index [21] and Readability Formulas [22] were used. endstream endobj 279 0 obj <>/Subtype/Form/Type/XObject>>stream https://doi.org/10.1002/nur.20147. The disease is reported to be associated with depression, anxiety, high trait anxiety and high levels of stress. Results: part Gives the ORCID of a series editor. J Psychosom Obstet Gynaecol. application/pdf E\i\\ HHS Vulnerability Disclosure, Help 0 H237402VH2P0P4&F endstream endobj 174 0 obj <>/Subtype/Form/Type/XObject>>stream Through a methodological design, phase 1 was qualitative and phase 2 was a cross-sectional study. http://ns.adobe.com/xap/1.0/sType/Font# Endometriosis is a chronic disease impacting on many aspects of a womans life. PubMed Endometriosis has a significant social and psychological impact on the lives of women across several domains and there is an urgent need to develop and evaluate interventions for supporting women and partners living with this chronic and often debilitating condition. and transmitted securely. Health Qual Life Outcomes. E\\y\FzFfP\.s=3sS#&U) The EIQ, as a disease-specific questionnaire, could be used to provide detailed information on the multi-dimensional impacts of endometriosis in population health surveys, to compare different areas and stages of patients lives or different management options. Endometriosis is an estrogen-dependent, chronic gynecological disease characterized by the presence of endometrial glands and stroma outside the uterus, which can result in a broad spectrum of symptoms, including dysmenorrhea, pelvic pain and infertility [].The etiopathogenesis of endometriosis is uncertain but is probably a multifactorial process resulting in a heterogeneous . GTS_PDFXConformance 2021 Mar;50(3):101860. doi: 10.1016/j.jogoh.2020.101860. 0 Endometriosis is a chronic disease as symptoms may continue despite seemingly adequate treatment [30]. Fertil Steril. Bag AuthorInformation 0.749023 g internal E\i\\ `asp8WT(\\H!CT $ `asp8WT(\\H!CT $ Grant JS, Davis LL. ReadabilityFormulas.com, free readability tools to check for reading levels, reading assessment and reading grade levels. The total score for each dimension was calculated as a mean of the three recall periods. endstream endobj 152 0 obj <>/Subtype/Form/Type/XObject>>stream In a multinational study [5], 745 participants had a mean age of 32.5 years and a mean delay in diagnosis of 6.7 years, similar to the mean age (32.6) and delay (8.3) in this study. 0 0 9.949 9.426 re It causes a chronic inflammatory reaction that may result in the formation of scar tissue (adhesions, fibrosis) within the pelvis and other parts of the body. Therefore, a questionnaire with a long-term perspective is necessary. The Endometriosis Impact Questionnaire (EIQ) is a self-report questionnaire which asks women how endometriosis has affected their lives over the three recall periods including last 12 months, 1 to 5 years ago and more than 5 years ago. In each recall period, all items correlated to total items at a level above 0.3 except for two items, which correlated to total items at a level of 0.2. E\i\\ http://ns.adobe.com/pdf/1.3/ H*2T0T04&Ff 0 X)A PMC Chauvet P, Auclair C, Mourgues C, Canis M, Gerbaud L, Bourdel N. J Gynecol Obstet Hum Reprod. Google Scholar. endstream endobj 274 0 obj <>/Subtype/Form/Type/XObject>>stream 2012;5:29. endobj endstream endobj 134 0 obj <>/Subtype/Form/Type/XObject>>stream When to Use Web-based Surveys. 2018;125(1):5562. pdfx The CVI was measured as a percentage of the items rated as 3 or 4 [23, 24]. Moradi, M., Parker, M., Sneddon, A. et al. The Endometriosis Health Profile-5 is a reliable and valid short form questionnaire which can also be supplemented with a short form version of the modular questionnaire when required and will be especially useful in clinical settings where a short and economical endometRIosis health status measure is required. 2004;46(6):6418. E\\y\FzFfP\.s=3sS#&U) Three items were removed from the 66-item EIQ because they did not reach a 0.4 factor loading. The women reported that their first endometriosis-related symptoms were experienced at a mean age of 17.4 6.8 years (range: 11-41), and diagnosis was made at 25.6 7.9 years (range: 15-42), with an average of 8.1 6 years (range: 3 months - 24 yrs) delay in diagnosis of endometriosis. Translation and psychometric evaluation of the simplified Chinese-version Endometriosis Health Profile-30. 0 0 9.949 9.426 re endstream endobj 239 0 obj <>/Subtype/Form/Type/XObject>>stream Therefore, the applicability to Australian women with different characteristics to the participants, and non-Australians might be limited. H*2T0T04&F H4 0[V`9&q !YfVsu\TDgUfHLO{#vXMw\ja+-  Conformance level of PDF/A standard A clear correlation is revealed between the deterioration of the reported physical and mental state and impaired medical care for patients suffering from endometriosis during the COVID-19 pandemic and there was a significant link between the reported deterioration of mental and physical wellbeing and impairedmedical care (cancellation). women in whom endometriosis was excluded. The EIQ scores for the sample as a whole, and the distribution of the scores are reported in Table 3. The online questionnaire facilitated access to women within and beyond Australia, which was time and expense-saving. 0.749023 g Critique and recommendations. OriginalDocumentID 2014;14:123. https://doi.org/10.1186/1472-6874-14-123. https://doi.org/10.1093/humupd/dmt027. Endometriosis-associated pain was reported to have a significant impact on numerous facets of women's lives including physical functioning [ 7, 38, 39 ], ability to work [ 2, 6, 7, 38, 39] and to carry out activities of daily living (e.g., housework) [ 7 ], social functioning and personal relationships [ 2, 5, 6, 7, 8, 38, 39 ]. Use it to assist in identifying patients/students who may be candidates for additional assessment by a physician who specializes in the treatment of endometriosis. f f endstream endobj 180 0 obj <>/Subtype/Form/Type/XObject>>stream E\i\\ XMP08 Spec: An ordered array of plate names that are needed to print the document (including any in contained documents). The Women's Health Symptoms Study (WHSS) WHSS is the first prospective epidemiological study, at a global level, to investigate the potential of a symptom-based questionnaire to predict the diagnosis of endome-triosis. 0.749023 g endstream endobj 193 0 obj <>/Subtype/Form/Type/XObject>>stream Feedback was generally positive stating that It worked fine and The instructions are very clear. endstream endobj 162 0 obj <>/Subtype/Form/Type/XObject>>stream `asp8WT(\\H!CT $ High positive correlations between the EIQ and the EHP-5 (altered recall period) indicated good evidence of concurrent validity. endstream endobj 237 0 obj <>/Subtype/Form/Type/XObject>>stream Validation of a scale involves the collection of empirical evidence concerning its use26. H*2T0T04&Ff endstream endobj 268 0 obj <>/Subtype/Form/Type/XObject>>stream We acknowledge the experts who provided valuable comments and feedback about the EIQ and many organizations and people who helped this study by disseminating the online questionnaire link. 0 0 9.949 9.426 re internal 0.749023 g Methods: Three studies were carried out to develop the Endometriosis Health Profile-5. endstream endobj 225 0 obj <>/Subtype/Form/Type/XObject>>stream #p2R_1` 3f Would you like email updates of new search results? E\\y\FzFfP\.s=3sS#&U) https://doi.org/10.1016/j.fertnstert.2011.05.090. A structure containing the characteristics of a font used in a document E\\y\FzFfFP\.s=3s#(&Q/ H*2T0T04&Ff E\i\\ 0.749023 g 2011;3(1):97110. The development and validation of the daily electronic Endometriosis Pain and Bleeding Diary. Provided by the Springer Nature SharedIt content-sharing initiative. 2011;8(2):497503. dysfunction or loss of libido. Sensitive information is more frequently and accurately reported in self-administered modes than when interviewers ask the questions [37]. Take the completed questionnaire with you to your appointment, so you have it on hand as a checklist. Two frequently used indicators of a scales reliability, including internal consistency (Cronbachs alpha) and stability (Pearson correlation coefficient (r), test-retest reliability) were evaluated [26]. H4 0[V`9&q !YfVsu\TDgUfHLO{#vXMw\ja+-  f 0 0 9.949 9.425 re 1992;5(4):1947. Background: Endometriosis affects approximately 10% of women and is associated with a range of symptoms including pelvic pain, abnormal bleeding, and painful sexual intercourse. endstream endobj 194 0 obj <>/Subtype/Form/Type/XObject>>stream reliability endstream endobj 212 0 obj <>/Subtype/Form/Type/XObject>>stream The required sample size was estimated at 350 to 400 to have subject-to-variable ratio of 5:1, which identified as adequate in most cases [26]. All data were analyzed using SPSS version 20, and a probability values of p< 0.05 were considered to be statistically significant. 2011;96(2):366373. Cronbach's alpha of 0.99 for the whole 63-item EIQ, and 0.84 to 0.98 for the dimensions suggests a very good reliability. 0 X)A Springer Nature ORCID Schema MM, MP, AS, VL and DA revised the manuscript critically and approved the final manuscript. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. 0 Endometriosis pain numeric rating scale (pain NRS) The Pain NRS was used to characterize endometriosis pain as an average pain score over the number of days when the subject reported NRS during the 35 calendar days immediately prior to and including the study visit date. endstream endobj 149 0 obj <>/Subtype/Form/Type/XObject>>stream endstream endobj 185 0 obj <>/Subtype/Form/Type/XObject>>stream Face validity, content validity and further revisions resulted in a decrease to 66 items, and this version was used to assess factor analysis, concurrent validity, and test-retest reliability. `asp8WT(\\H!CT $ Company creating the PDF Some infertility reasons have been connected to ovarian inflammation. amd For example, current questionnaires are not able to measure the impacts on a woman who lost her sexual-intimate relationship or who was not able to complete studies and/or work goals, loss of job or promotion opportunities, or addressed her regrets from living with endometriosis. 2013;28(10):267785. endstream endobj 238 0 obj <>/Subtype/Form/Type/XObject>>stream endstream endobj 138 0 obj <>/Subtype/Form/Type/XObject>>stream f Techatraisak K, Hestiantoro A, Soon R et al. Maryam Moradi The ENDOCARE questionnaire (ECQ): a valid and reliable instrument to measure the patient-centeredness of endometriosis care in Europe. 2001;98(2):25864. Endometriosis is a disease characterized by the presence of tissue resembling endometrium (the lining of the uterus) outside the uterus (1). H*2T0T04&F uuid:34576cf7-e17b-4316-a457-670595fb7ddb Questionnaire developers can overestimate peoples ability to recall past events [20]. 0.749023 g More than eleven percent of women between the ages fifteen and forty-four in the US have endometriosis, which can often decrease a womans quality of life due to painful symptoms and impair her reproductive potential. Article Health Measurement Scales: A practical guide to their development and use. 2022 Oct;42(7):3172-3180. doi: 10.1080/01443615.2022.2109132. 2008;112(6):1214-1220. 0.749023 g 3 0 obj Text authorInfo f default 0 Deal LS, DiBenedetti DB, Williams VS, Fehnel SE. Her Endometriosis Reality Pain and Impact Questionnaire Subject: This downloadable endometriosis pain and impact questionnaire can help your patient communicate her pain and treatment experience. The EIQ-link was widely advertised via flyers disseminated or posted. endstream endobj 171 0 obj <>/Subtype/Form/Type/XObject>>stream Feedback was sought from 12 patients and 14 health professionals with expertise in endometriosis, questionnaires development, chronic disease, and psychology. endstream endobj 177 0 obj <>/Subtype/Form/Type/XObject>>stream By clicking accept or continuing to use the site, you agree to the terms outlined in our. 0 0 9.949 9.425 re Endometriosis A Guide for Patients Revised 2016 A glossary of italicized words is located at the end of this booklet. MM and DA drafted the manuscript. stPart Fonts Following these steps the EIQ was reduced to 66 items. Because of the chronic and recurring nature, many of the impacts of endometriosis could be missed using, Journal of Obstetrics, Gynecology and Cancer Research. (PDF 428 kb) Browse. H4 0'l K] https://doi.org/10.5301/je.5000222. E\\y\FzFfFP\.s=3s#(&Q/ 0 X)A 0 0 9.949 9.426 re However, very little is known about the relationship between endometriosis-related symptoms and sex. 0.749023 g Identifies a portion of a document. Jones G, Jenkinson C, Kennedy S. The impact of endometriosis upon quality of life: a qualitative analysis. endstream endobj 132 0 obj <>/Subtype/Form/Type/XObject>>stream endobj Amendment of PDF/A standard The Endometriosis Impact Questionnaire (EIQ) is a self-reported questionnaire that asks women about the impact of endometriosis on their lives over the "last 12 months", "1 to 5 years ago . 0 0 9.949 9.425 re Impact of endometriosis on quality of life and work productivity: a multicenter study across ten countries. H4 0[V`9&q !YfVsu\TDgUfHLO{#vXMw\ja+-  uuid:4e3e07b0-e9da-4c37-95fb-343f78e6db35 The Endometriosis Impact Questionnaire (EIQ) is a self-report questionnaire which asks women how endometriosis has affected their lives over the three recall periods including 'last 12 months', '1 to 5 years ago' and 'more than 5 years ago'. f Pallant J. SPSS Survival Manual: A step by step guide to data analysis using the SPSS program. E\\y\FzFfFP\.s=3s#(&Q/ 0.749023 g E\\y\FzFfP\.s=3sS#&U) endstream endobj 184 0 obj <>/Subtype/Form/Type/XObject>>stream E\\y\FzFfFP\.s=3s#(&Q/ This can be a position at which the document has been changed since the most recent event history (stEvt:changed). 2013 Mar;28(3):691-7. doi: 10.1093/humrep/des426. Participants were aged 16-58 years. Hum Reprod. H*2T0T04&Ff f endstream endobj 255 0 obj <>/Subtype/Form/Type/XObject>>stream H*2T0T04&Ff @article{Namazi2020EndometriosisRH, title={Endometriosis Reproductive Health Questionnaire (ERHQ): A self-administered questionnaire to measure the reproductive health in women with endometriosis. Accessed 21 July 2018. Moradi M, Parker M, Sneddon A, Lopez V, Ellwood D. Impact of endometriosis on women's lives: a qualitative study. H4 0[V`9&q !YfVsu\TDgUfHLO{#vXMw\ja+-  H*2T0T04&Ff endstream endobj 183 0 obj <>/Subtype/Form/Type/XObject>>stream f It could be useful to guide development of an individualized disease management plan, and could help patients to communicate with health professionals and contribute to such a plan. We recommend additional studies to establish stronger psychometric properties including known-groups validity and sensitivity to change for the last 12 months section. Such processes could also contribute to the decreased fecundity of patients with endometriosis or POCS [47, 48]. National Library of Medicine The final 63-item EIQ contained six dimensions including: 33-item physical-psychosocial; 3-item fertility; 7-item sexual; 11-item employment; 6-item educational; and 3-item lifestyle. 0.749023 g 0 X)A uuid:0c5768a1-616e-4835-addc-0eb2248d7a8c H237402VH2P0P4&F Therefore, the recall period of last 12 months for the EIQ, had high concurrent validity or very good correlation with the EHP-5. 2014;51(3):51121. It could be used with all three recall periods or each period independently, because each has satisfactory validity and reliability. E\\y\FzFfFP\.s=3s#(&Q/ Part <> eCollection 2020. Font The adapted theory-driven dimensions of PCEC are preferred over the data-driven factors and may serve to benchmark patient-centeredness, conduct cross-cultural European research and set targets for improvement. 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